selected publications
-
academic article
- Caregiver Accounts of Lucid Episodes in Persons With Advanced Dementia.. Gerontologist. 64. 2024
- "A Raw Blessing" - Caregivers' Experiences Providing Care to Persons Living with Dementia in the COVID-19 Pandemic.. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics. 51:626-640. 2023
- Development of a Lived Experience Panel to inform the design of embedded pragmatic trials of dementia care interventions.. Journal of the American Geriatrics Society. 72:139-148. 2023
- Gender of Study Partners and Research Participants Associated With Differences in Study Partner Ratings of Cognition and Activity Level.. The Journals of Gerontology: Series B. 78:1318-1329. 2023
- Awareness of diagnosis predicts changes in quality of life in individuals with mild cognitive impairment and mild stage dementia.. International Journal of Geriatric Psychiatry. 38:-. 2023
- Establishing a Framework for Gathering Structural and Social Determinants of Health in Alzheimer's Disease Research Centers.. Gerontologist. 62:694-703. 2022
- Predictors of who Serves as an Alzheimer's Disease Research Participant's Study Partner and the Impact of their Relationship on Study Partners' Reports on Participants.. Research on Aging. 44:734-746. 2022
- Is there a difference between terminal lucidity and paradoxical lucidity?. Alzheimer's & dementia : the journal of the Alzheimer's Association. 18:540-541. 2022
- Deciding with Others: Interdependent Decision-Making 2022
- The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma: A vignette-based experiment.. Social Science and Medicine. -. 2021
- What is paradoxical lucidity? The answer begins with its definition.. Alzheimer's & dementia : the journal of the Alzheimer's Association. 18:513-521. 2021
- 'That would be dreadful': The ethical, legal, and social challenges of sharing your Alzheimer's disease biomarker and genetic testing results with others.. Journal of law and the biosciences. 8:-. 2021
- Effects of Self-Identification as a Caregiver on Expectations of Public Stigma of Alzheimer's Disease.. Journal of Alzheimer's Disease Reports. 5:31-39. 2021
- Research Attitudes Questionnaire scores predict Alzheimer's disease clinical trial dropout.. Clinical trials (London, England). 18:237-244. 2021
- Disclosing Genetic Risk of Alzheimer's Disease to Cognitively Unimpaired Older Adults: Findings from the Study of Knowledge and Reactions to APOE Testing (SOKRATES II).. Journal of Alzheimer's Disease. 84:1015-1028. 2021
- Cognitive impairment in Parkinson's disease: a report from a multidisciplinary symposium on unmet needs and future directions to maintain cognitive health.. NPJ Parkinson's disease. -. 2018
- What features of stigma do the public most commonly attribute to Alzheimer's disease dementia? Results of a survey of the U.S. general public.. Alzheimer's & dementia : the journal of the Alzheimer's Association. 14:925-932. 2018
- Advances in Alzheimer's imaging are changing the experience of Alzheimer's disease.. Alzheimer's & dementia (Amsterdam, Netherlands). 285-300. 2018
- Relationships Between Cognitive Complaints and Quality of Life in Older Adults With Mild Cognitive Impairment, Mild Alzheimer Disease Dementia, and Normal Cognition.. Alzheimer Disease and Associated Disorders. 32:276-283. 2018
- Awareness of Mild Cognitive Impairment and Mild Alzheimer's Disease Dementia Diagnoses Associated With Lower Self-Ratings of Quality of Life in Older Adults.. The Journals of Gerontology: Series B. 72:974-985. 2017
- Parkinsonian signs are a risk factor for falls.. Gait & posture. 1-5. 2017
- APOE-related risk of mild cognitive impairment and dementia for prevention trials: An analysis of four cohorts.. PLoS medicine. 14:-. 2017
- Identifiable Characteristics and Potentially Malleable Beliefs Predict Stigmatizing Attributions Toward Persons With Alzheimer's Disease Dementia: Results of a Survey of the U.S. General Public.. Health communication. 33:264-273. 2016
- The Penn Parkinson's Daily Activities Questionnaire-15: Psychometric properties of a brief assessment of cognitive instrumental activities of daily living in Parkinson's disease.. Parkinsonism & related disorders. 21-6. 2016
- Development and initial testing of the Penn Parkinson's Daily Activities Questionnaire.. Movement disorders : official journal of the Movement Disorder Society. 31:126-34. 2015
- Frequency and clinicopathological characteristics of presenilin 1 Gly206Ala mutation in Puerto Rican Hispanics with dementia.. Journal of Alzheimer's disease : JAD. 33:1089-95. 2013
- Validation of an instrument to measure older adults' expectations regarding movement (ERM).. PloS one. 7:-. 2012
- Association of common genetic variants in GPCPD1 with scaling of visual cortical surface area in humans.. Proceedings of the National Academy of Sciences of the United States of America. 109:3985-90. 2012
- Screening questionnaires for parkinsonism: a systematic review.. Parkinsonism & related disorders. 18:216-24. 2011
- Ethnoracial differences in the clinical characteristics of Alzheimer's disease at initial presentation at an urban Alzheimer's disease center.. The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry. 19:430-9. 2011