academic article

• Virtual mind-body treatment for adolescents with neurofibromatosis: Study protocol for a single-blind randomized controlled trial..  Contemporary clinical trials.  -. 2020
• Challenges associated with parenting youth with neurofibromatosis: A qualitative investigation..  American journal of medical genetics. Part A.  176:959-968. 2018
• The impact of a mind-body program on multiple dimensions of resiliency among geographically diverse patients with neurofibromatosis..  Journal of neuro-oncology.  137:321-329. 2017
• Health literacy assessment in adults with neurofibromatosis: electronic and short-form measurement using FCCHL and Health LiTT..  Journal of neuro-oncology.  136:335-342. 2017
• First report of factors associated with satisfaction in patients with neurofibromatosis..  American journal of medical genetics. Part A.  173:671-677. 2017
• First use of patient reported outcomes measurement information system (PROMIS) measures in adults with neurofibromatosis..  Journal of neuro-oncology.  131:413-419. 2016
• Mindfulness and Coping Are Inversely Related to Psychiatric Symptoms in Patients and Informal Caregivers in the Neuroscience ICU: Implications for Clinical Care..  Critical care medicine.  44:2028-2036. 2016
• Mind-body therapy via videoconferencing in patients with neurofibromatosis: An RCT..  Neurology.  87:806-14. 2016
• Psychosocial resiliency is associated with lower emotional distress among dyads of patients and their informal caregivers in the neuroscience intensive care unit..  Journal of critical care.  154-159. 2016