academic article

• Current Recommendations for Patient-Reported Outcome Measures Assessing Domains of Quality of Life in Neurofibromatosis Clinical Trials..  Neurology.  97:S50-S63. 2021
• Neurocognitive outcomes in neurofibromatosis clinical trials: Recommendations for the domain of attention..  Neurology.  87:S21-30. 2016
• Patient-reported outcomes of pain and physical functioning in neurofibromatosis clinical trials..  Neurology.  87:S4-S12. 2016