selected publications
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academic article
- Current Recommendations for Patient-Reported Outcome Measures Assessing Domains of Quality of Life in Neurofibromatosis Clinical Trials.. Neurology. 97:S50-S63. 2021
- Neurocognitive outcomes in neurofibromatosis clinical trials: Recommendations for the domain of attention.. Neurology. 87:S21-30. 2016
- Patient-reported outcomes of pain and physical functioning in neurofibromatosis clinical trials.. Neurology. 87:S4-S12. 2016