academic article

• Health literacy assessment in adults with neurofibromatosis: electronic and short-form measurement using FCCHL and Health LiTT..  Journal of neuro-oncology.  136:335-342. 2017
• First report of factors associated with satisfaction in patients with neurofibromatosis..  American journal of medical genetics. Part A.  173:671-677. 2017
• First use of patient reported outcomes measurement information system (PROMIS) measures in adults with neurofibromatosis..  Journal of neuro-oncology.  131:413-419. 2016