academic article

• Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: A New Health-Related Quality-of-Life Instrument.  American Journal of Kidney Diseases.  2018
• Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: A New Health-Related Quality-of-Life Instrument..  American journal of kidney diseases : the official journal of the National Kidney Foundation.  71:225-235. 2017
• TWO NEW INSTRUMENTS TO MEASURE AUTOSOMAL POLYCYSTIC KIDNEY DISEASE (ADPKD) RELATED DISEASE BURDEN: ADPKD-IMPACT SCALE (ADPKD-IS) AND ADPKD-URINARY IMPACT SCALE (ADPKD-UIS).  Nephrology Dialysis Transplantation.  2013