selected publications
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academic article
- Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: A New Health-Related Quality-of-Life Instrument. American Journal of Kidney Diseases. 2018
- Development of the Autosomal Dominant Polycystic Kidney Disease Impact Scale: A New Health-Related Quality-of-Life Instrument.. American journal of kidney diseases : the official journal of the National Kidney Foundation. 71:225-235. 2017
- TWO NEW INSTRUMENTS TO MEASURE AUTOSOMAL POLYCYSTIC KIDNEY DISEASE (ADPKD) RELATED DISEASE BURDEN: ADPKD-IMPACT SCALE (ADPKD-IS) AND ADPKD-URINARY IMPACT SCALE (ADPKD-UIS). Nephrology Dialysis Transplantation. 2013