academic article

• Effect of Mind-Body Skills Training on Quality of Life for Geographically Diverse Adults With Neurofibromatosis: A Fully Remote Randomized Clinical Trial..  JAMA network open.  6:-. 2023
• Improvement in resiliency factors among adolescents with neurofibromatosis who participate in a virtual mind-body group program..  Journal of neuro-oncology.  147:451-457. 2020
• Virtual mind-body treatment for geographically diverse youth with neurofibromatosis: A pilot randomized controlled trial..  General hospital psychiatry.  72-78. 2019
• Cultivating resiliency in patients with neurofibromatosis 2 who are deafened or have severe hearing loss: a live‑video randomized control trial..  Journal of neuro-oncology.  145:561-569. 2019
• First report of quality of life in adults with neurofibromatosis 2 who are deafened or have significant hearing loss: results of a live-video randomized control trial..  Journal of neuro-oncology.  143:505-513. 2019
• Mind-Body Treatment for International English-Speaking Adults With Neurofibromatosis via Live Videoconferencing: Protocol for a Single-Blind Randomized Controlled Trial..  JMIR research protocols.  7:-. 2018
• Health literacy assessment in adults with neurofibromatosis: electronic and short-form measurement using FCCHL and Health LiTT..  Journal of neuro-oncology.  136:335-342. 2017
• First report of factors associated with satisfaction in patients with neurofibromatosis..  American journal of medical genetics. Part A.  173:671-677. 2017
• First use of patient reported outcomes measurement information system (PROMIS) measures in adults with neurofibromatosis..  Journal of neuro-oncology.  131:413-419. 2016
• Current status and recommendations for biomarkers and biobanking in neurofibromatosis..  Neurology.  87:S40-8. 2016
• Current whole-body MRI applications in the neurofibromatoses: NF1, NF2, and schwannomatosis..  Neurology.  87:S31-9. 2016
• Sleep and pulmonary outcomes for clinical trials of airway plexiform neurofibromas in NF1..  Neurology.  87:S13-20. 2016
• Mind-body therapy via videoconferencing in patients with neurofibromatosis: An RCT..  Neurology.  87:806-14. 2016
• Health-related Quality of Life of Individuals With Neurofibromatosis Type 2: Results From the NF2 Natural History Study..  Otology & neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology.  37:574-9. 2016
• Quality of life among children and adolescents with neurofibromatosis 1: a systematic review of the literature..  Journal of neuro-oncology.  122:219-28. 2015
• Examining perceived cancer risk among patients with neurofibromatosis type 1..  Journal of neuro-oncology.  122:127-33. 2015
• The relaxation response resiliency program (3RP) in patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis: results from a pilot study..  Journal of neuro-oncology.  120:103-9. 2014
• Quality of life among adult patients with neurofibromatosis 1, neurofibromatosis 2 and schwannomatosis: a systematic review of the literature..  Journal of neuro-oncology.  114:257-62. 2013