selected publications
-
academic article
- Effect of Mind-Body Skills Training on Quality of Life for Geographically Diverse Adults With Neurofibromatosis: A Fully Remote Randomized Clinical Trial.. JAMA network open. 6:-. 2023
- Improvement in resiliency factors among adolescents with neurofibromatosis who participate in a virtual mind-body group program.. Journal of neuro-oncology. 147:451-457. 2020
- Virtual mind-body treatment for geographically diverse youth with neurofibromatosis: A pilot randomized controlled trial.. General hospital psychiatry. 72-78. 2019
- Cultivating resiliency in patients with neurofibromatosis 2 who are deafened or have severe hearing loss: a live‑video randomized control trial.. Journal of neuro-oncology. 145:561-569. 2019
- First report of quality of life in adults with neurofibromatosis 2 who are deafened or have significant hearing loss: results of a live-video randomized control trial.. Journal of neuro-oncology. 143:505-513. 2019
- Mind-Body Treatment for International English-Speaking Adults With Neurofibromatosis via Live Videoconferencing: Protocol for a Single-Blind Randomized Controlled Trial.. JMIR research protocols. 7:-. 2018
- Health literacy assessment in adults with neurofibromatosis: electronic and short-form measurement using FCCHL and Health LiTT.. Journal of neuro-oncology. 136:335-342. 2017
- First report of factors associated with satisfaction in patients with neurofibromatosis.. American journal of medical genetics. Part A. 173:671-677. 2017
- First use of patient reported outcomes measurement information system (PROMIS) measures in adults with neurofibromatosis.. Journal of neuro-oncology. 131:413-419. 2016
- Current status and recommendations for biomarkers and biobanking in neurofibromatosis.. Neurology. 87:S40-8. 2016
- Current whole-body MRI applications in the neurofibromatoses: NF1, NF2, and schwannomatosis.. Neurology. 87:S31-9. 2016
- Sleep and pulmonary outcomes for clinical trials of airway plexiform neurofibromas in NF1.. Neurology. 87:S13-20. 2016
- Mind-body therapy via videoconferencing in patients with neurofibromatosis: An RCT.. Neurology. 87:806-14. 2016
- Health-related Quality of Life of Individuals With Neurofibromatosis Type 2: Results From the NF2 Natural History Study.. Otology & neurotology : official publication of the American Otological Society, American Neurotology Society [and] European Academy of Otology and Neurotology. 37:574-9. 2016
- Quality of life among children and adolescents with neurofibromatosis 1: a systematic review of the literature.. Journal of neuro-oncology. 122:219-28. 2015
- Examining perceived cancer risk among patients with neurofibromatosis type 1.. Journal of neuro-oncology. 122:127-33. 2015
- The relaxation response resiliency program (3RP) in patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis: results from a pilot study.. Journal of neuro-oncology. 120:103-9. 2014
- Quality of life among adult patients with neurofibromatosis 1, neurofibromatosis 2 and schwannomatosis: a systematic review of the literature.. Journal of neuro-oncology. 114:257-62. 2013