academic article

• Effect of Mind-Body Skills Training on Quality of Life for Geographically Diverse Adults With Neurofibromatosis: A Fully Remote Randomized Clinical Trial..  JAMA network open.  6:-. 2023
• First report of quality of life in adults with neurofibromatosis 2 who are deafened or have significant hearing loss: results of a live-video randomized control trial..  Journal of neuro-oncology.  143:505-513. 2019
• Mind-Body Treatment for International English-Speaking Adults With Neurofibromatosis via Live Videoconferencing: Protocol for a Single-Blind Randomized Controlled Trial..  JMIR research protocols.  7:-. 2018
• Health literacy assessment in adults with neurofibromatosis: electronic and short-form measurement using FCCHL and Health LiTT..  Journal of neuro-oncology.  136:335-342. 2017
• First report of factors associated with satisfaction in patients with neurofibromatosis..  American journal of medical genetics. Part A.  173:671-677. 2017
• First use of patient reported outcomes measurement information system (PROMIS) measures in adults with neurofibromatosis..  Journal of neuro-oncology.  131:413-419. 2016