selected publications
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academic article
- Resiliency outcomes after participation in an asynchronous web-based platform for adults with neurofibromatosis: The NF-Web study.. PloS one. 18:-. 2023
- A roadmap for early psychosocial support in palliative care for people impacted by ALS-reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care.. Translational behavioral medicine. 13:722-726. 2023
- The impact of a virtual mind-body program on resilience factors among international English-speaking adults with neurofibromatoses: secondary analysis of a randomized clinical trial.. Journal of neuro-oncology. 163:707-716. 2023
- Resilient together-ALS: leveraging the NDD transdiagnostic framework to develop an early dyadic intervention for people with amyotrophic lateral sclerosis and their informal care-partners.. Amyotrophic lateral sclerosis & frontotemporal degeneration. 1-8. 2023
- Effect of Mind-Body Skills Training on Quality of Life for Geographically Diverse Adults With Neurofibromatosis: A Fully Remote Randomized Clinical Trial.. JAMA network open. 6:-. 2023
- Does gender moderate resiliency variables and posttraumatic stress symptoms in informal caregivers of neurocritical care patients? An exploratory study.. Psychology, health & medicine. 29:22-38. 2023
- Occurrence and Severity of Suicidal Ideation in Adults With Neurofibromatosis Participating in a Mind-Body RCT.. Cognitive and behavioral neurology : official journal of the Society for Behavioral and Cognitive Neurology. 36:19-27. 2023
- The Recovering Together study protocol: A single-blind RCT to prevent chronic emotional distress in patient-cargiver dyads in the Neuro-ICU.. Contemporary clinical trials. -. 2022
- Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study.. PEC innovation. -. 2022
- The Recovering Together Initiative: Integrating Psychosocial Care into ICUs.. NEJM catalyst innovations in care delivery. 3. 2022
- Together from the start: A transdiagnostic framework for early dyadic interventions for neurodegenerative diseases.. Journal of the American Geriatrics Society. 70:1850-1862. 2022
- Orthopedic Providers' Preferences for Education and Training on Psychosocial Clinical Research Initiatives: A Qualitative Investigation.. Journal of patient experience. -. 2022
- Mindfulness is inversely associated with psychological symptoms in long-term cardiac arrest survivors.. Journal of behavioral medicine. 45:643-648. 2022
- Understanding the interplay between lifestyle factors and emotional distress for hemorrhagic stroke survivors and their informal caregivers: Protocol for a mixed methods dyadic natural history study.. PloS one. 17:-. 2022
- Stopping to Listen: Using Qualitative Methods to Inform a Web-Based Platform for Adults With Neurofibromatosis.. Journal of patient experience. -. 2021
- Emotional distress in neuro-ICU survivor-caregiver dyads: The recovering together randomized clinical trial.. Health psychology : official journal of the Division of Health Psychology, American Psychological Association. 41:268-277. 2021
- Adaptation of a Live Video Mind-Body Program to a Web-Based Platform for English-Speaking Adults With Neurofibromatosis: Protocol for the NF-Web Study.. JMIR research protocols. 10:-. 2021
- Can a Dyadic Resiliency Program Improve Quality of Life in Cognitively Intact Dyads of Neuro-ICU Survivors and Informal Caregivers? Results from a Pilot RCT.. Neurocritical care. 35:756-766. 2021
- Development of a Novel Mind-Body Activity and Pain Management Program for Older Adults With Cognitive Decline.. The Gerontologist. 61:449-459. 2021
- Mind-Body Therapy via Videoconferencing in Patients With Neurofibromatosis: Analyses of 1-Year Follow-up.. Annals of behavioral medicine : a publication of the Society of Behavioral Medicine. 55:77-81. 2021
- Emotional recovery after ocular trauma: is there more than meets the eye?. Eye (London, England). 36:244-245. 2021
- Associations Between Gender, Resiliency Factors, and Anxiety in Neuro-ICU Caregivers: a Prospective Study.. International journal of behavioral medicine. 27:677-686. 2020
- Resilient youth with neurofibromatosis: Less perceived stress and greater life satisfaction after an 8-week virtual mind-body intervention.. Journal of psychosocial oncology. 39:680-685. 2020
- Feasibility and Efficacy of a Resiliency Intervention for the Prevention of Chronic Emotional Distress Among Survivor-Caregiver Dyads Admitted to the Neuroscience Intensive Care Unit: A Randomized Clinical Trial.. JAMA network open. 3:-. 2020
- Recovering together: building resiliency in dyads of stroke patients and their caregivers at risk for chronic emotional distress; a feasibility study.. Pilot and feasibility studies. -. 2020
- Building Resiliency in Dyads of Patients Admitted to the Neuroscience Intensive Care Unit and Their Family Caregivers: Lessons Learned From William and Laura.. Cognitive and behavioral practice. 27:321-335. 2020
- Improvement in resiliency factors among adolescents with neurofibromatosis who participate in a virtual mind-body group program.. Journal of neuro-oncology. 147:451-457. 2020
- Baseline resilience and depression symptoms predict trajectory of depression in dyads of patients and their informal caregivers following discharge from the Neuro-ICU.. General hospital psychiatry. 87-92. 2019
- Virtual mind-body treatment for geographically diverse youth with neurofibromatosis: A pilot randomized controlled trial.. General hospital psychiatry. 72-78. 2019
- Cultivating resiliency in patients with neurofibromatosis 2 who are deafened or have severe hearing loss: a live‑video randomized control trial.. Journal of neuro-oncology. 145:561-569. 2019