academic article

• Resiliency outcomes after participation in an asynchronous web-based platform for adults with neurofibromatosis: The NF-Web study..  PloS one.  18:-. 2023
• A roadmap for early psychosocial support in palliative care for people impacted by ALS-reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care..  Translational behavioral medicine.  13:722-726. 2023
• The impact of a virtual mind-body program on resilience factors among international English-speaking adults with neurofibromatoses: secondary analysis of a randomized clinical trial..  Journal of neuro-oncology.  163:707-716. 2023
• Resilient together-ALS: leveraging the NDD transdiagnostic framework to develop an early dyadic intervention for people with amyotrophic lateral sclerosis and their informal care-partners..  Amyotrophic lateral sclerosis & frontotemporal degeneration.  1-8. 2023
• Effect of Mind-Body Skills Training on Quality of Life for Geographically Diverse Adults With Neurofibromatosis: A Fully Remote Randomized Clinical Trial..  JAMA network open.  6:-. 2023
• Does gender moderate resiliency variables and posttraumatic stress symptoms in informal caregivers of neurocritical care patients? An exploratory study..  Psychology, health & medicine.  29:22-38. 2023
• Occurrence and Severity of Suicidal Ideation in Adults With Neurofibromatosis Participating in a Mind-Body RCT..  Cognitive and behavioral neurology : official journal of the Society for Behavioral and Cognitive Neurology.  36:19-27. 2023
• The Recovering Together study protocol: A single-blind RCT to prevent chronic emotional distress in patient-cargiver dyads in the Neuro-ICU..  Contemporary clinical trials.  -. 2022
• Early feasibility testing of a web-based mind-body resiliency program for adults with neurofibromatosis: The NF-Web study..  PEC innovation.  -. 2022
• The Recovering Together Initiative: Integrating Psychosocial Care into ICUs..  NEJM catalyst innovations in care delivery.  3. 2022
• Together from the start: A transdiagnostic framework for early dyadic interventions for neurodegenerative diseases..  Journal of the American Geriatrics Society.  70:1850-1862. 2022
• Orthopedic Providers' Preferences for Education and Training on Psychosocial Clinical Research Initiatives: A Qualitative Investigation..  Journal of patient experience.  -. 2022
• Mindfulness is inversely associated with psychological symptoms in long-term cardiac arrest survivors..  Journal of behavioral medicine.  45:643-648. 2022
• Understanding the interplay between lifestyle factors and emotional distress for hemorrhagic stroke survivors and their informal caregivers: Protocol for a mixed methods dyadic natural history study..  PloS one.  17:-. 2022
• Stopping to Listen: Using Qualitative Methods to Inform a Web-Based Platform for Adults With Neurofibromatosis..  Journal of patient experience.  -. 2021
• Emotional distress in neuro-ICU survivor-caregiver dyads: The recovering together randomized clinical trial..  Health psychology : official journal of the Division of Health Psychology, American Psychological Association.  41:268-277. 2021
• Adaptation of a Live Video Mind-Body Program to a Web-Based Platform for English-Speaking Adults With Neurofibromatosis: Protocol for the NF-Web Study..  JMIR research protocols.  10:-. 2021
• Can a Dyadic Resiliency Program Improve Quality of Life in Cognitively Intact Dyads of Neuro-ICU Survivors and Informal Caregivers? Results from a Pilot RCT..  Neurocritical care.  35:756-766. 2021
• Development of a Novel Mind-Body Activity and Pain Management Program for Older Adults With Cognitive Decline..  The Gerontologist.  61:449-459. 2021
• Mind-Body Therapy via Videoconferencing in Patients With Neurofibromatosis: Analyses of 1-Year Follow-up..  Annals of behavioral medicine : a publication of the Society of Behavioral Medicine.  55:77-81. 2021
• Emotional recovery after ocular trauma: is there more than meets the eye?.  Eye (London, England).  36:244-245. 2021
• Associations Between Gender, Resiliency Factors, and Anxiety in Neuro-ICU Caregivers: a Prospective Study..  International journal of behavioral medicine.  27:677-686. 2020
• Resilient youth with neurofibromatosis: Less perceived stress and greater life satisfaction after an 8-week virtual mind-body intervention..  Journal of psychosocial oncology.  39:680-685. 2020
• Feasibility and Efficacy of a Resiliency Intervention for the Prevention of Chronic Emotional Distress Among Survivor-Caregiver Dyads Admitted to the Neuroscience Intensive Care Unit: A Randomized Clinical Trial..  JAMA network open.  3:-. 2020
• Recovering together: building resiliency in dyads of stroke patients and their caregivers at risk for chronic emotional distress; a feasibility study..  Pilot and feasibility studies.  -. 2020
• Building Resiliency in Dyads of Patients Admitted to the Neuroscience Intensive Care Unit and Their Family Caregivers: Lessons Learned From William and Laura..  Cognitive and behavioral practice.  27:321-335. 2020
• Improvement in resiliency factors among adolescents with neurofibromatosis who participate in a virtual mind-body group program..  Journal of neuro-oncology.  147:451-457. 2020
• Baseline resilience and depression symptoms predict trajectory of depression in dyads of patients and their informal caregivers following discharge from the Neuro-ICU..  General hospital psychiatry.  87-92. 2019
• Virtual mind-body treatment for geographically diverse youth with neurofibromatosis: A pilot randomized controlled trial..  General hospital psychiatry.  72-78. 2019
• Cultivating resiliency in patients with neurofibromatosis 2 who are deafened or have severe hearing loss: a live‑video randomized control trial..  Journal of neuro-oncology.  145:561-569. 2019