selected publications
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academic article
- Double-Edged Sword: A Positive Brain Scan Result Heightens Confidence in an Alzheimer's Diagnosis But Also Leads to Higher Stigma Among Older Adults in a Vignette-Based Experiment.. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences. 79. 2024
- A survey study of Alzheimer's stigma among Black adults: intersectionality of Black identity and biomarker diagnosis.. Ethnicity & health. 29:946-962. 2024
- Caregiver Accounts of Lucid Episodes in Persons With Advanced Dementia.. Gerontologist. 64. 2024
- "A Raw Blessing" - Caregivers' Experiences Providing Care to Persons Living with Dementia in the COVID-19 Pandemic.. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics. 51:626-640. 2023
- How reactions to a brain scan result differ for adults based on self-identified Black and White race.. Alzheimer's & dementia : the journal of the Alzheimer's Association. 20:1527-1537. 2023
- Development of a Lived Experience Panel to inform the design of embedded pragmatic trials of dementia care interventions.. Journal of the American Geriatrics Society. 72:139-148. 2023
- Gender of Study Partners and Research Participants Associated With Differences in Study Partner Ratings of Cognition and Activity Level.. The Journals of Gerontology: Series B. 78:1318-1329. 2023
- Predictors of who Serves as an Alzheimer's Disease Research Participant's Study Partner and the Impact of their Relationship on Study Partners' Reports on Participants.. Research on Aging. 44:734-746. 2022
- Is there a difference between terminal lucidity and paradoxical lucidity?. Alzheimer's & dementia : the journal of the Alzheimer's Association. 18:540-541. 2022
- Deciding with Others: Interdependent Decision-Making 2022
- The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma: A vignette-based experiment.. Social Science and Medicine. -. 2021
- What is paradoxical lucidity? The answer begins with its definition.. Alzheimer's & dementia : the journal of the Alzheimer's Association. 18:513-521. 2021
- 'That would be dreadful': The ethical, legal, and social challenges of sharing your Alzheimer's disease biomarker and genetic testing results with others.. Journal of law and the biosciences. 8:-. 2021
- Effects of Self-Identification as a Caregiver on Expectations of Public Stigma of Alzheimer's Disease.. Journal of Alzheimer's Disease Reports. 5:31-39. 2021
- Disclosing Genetic Risk of Alzheimer's Disease to Cognitively Unimpaired Older Adults: Findings from the Study of Knowledge and Reactions to APOE Testing (SOKRATES II).. Journal of Alzheimer's Disease. 84:1015-1028. 2021