academic article

• Perspectives of adults with neurofibromatosis regarding the design of psychosocial trials: Results from an anonymous online survey..  Clinical trials (London, England).  21:73-84. 2023
• Impact of the coronavirus pandemic on mental health and health care in adults with neurofibromatosis: Patient perspectives from an online survey..  American journal of medical genetics. Part A.  188:71-82. 2021